Hard to believe, isn’t it? And I’m still just trying to catch up!
I went to the ER Thursday, April 24th when I woke up with chlls and fever (over 102) and an inflamed and swolen breast. Yowch! (This on top of the ongoing kidney/UTI situation).
I ended up being admitted to the hosptial, and stayed until Monday evening (who knew they would discharge someone after 7pm!).
The whole thing was a nightmare of conflicting opinions, fighting for the right to nurse my baby, and uncommunicative doctors. I think “An Open Letter to Homestead Hospital” will be appearing here soon… It was really so frustrating that I’ve sort of tried not to think about about it. But on the other hand, it’s just not going away.
I called my PCP for a follow-up appointment, and was told that I couldn’t get an appointment for months, but that I could come in as a walk-in. She suggested coming on a Wed or Thurs, and coming early in the morning. Great.
So I went in that Thursday, and was standing outside at 8:45 am (they open at 9). That made me #4 in the walk-in line. Which meant I got to see the doctor… at 1 pm! (Not, of course, that they told us that right away so we could go do something in the meantime.)
I got a referral to a Urologist, but just got the run-around from them regarding a referral for a lactation consultant, as well as getting the insurance to cover my medications.
When I got hold of the Urologist they gave me, it turned out that they were pediatric only. So I called the PCP back and got another name (after a big hassle). When I got hold of that office, they said that they no longer take my insurance. I called th PCP back (grrr!), and they said they would call the insurance for a current provider list and call me back. Excuse me if I don’t hold my breath.
Frustrated (happens a lot lately, doesn’t it?), I called my insurance company. They said that I could self-refer to a Urologist, and didn’t need a referral at all!
So I started calling down the list of Urologists from the insurance company’s website, which they said was the most current list. Pediatric only. Doesn’t take that insurance any more. We can see you at the end of June (that’s 2 months away at the time!). Doesn’t take that insurance. We can see you next year(!). Phone disconnected. And on and on…
After calling a dozen doctors (I kid you not), I found someone who could see me in two weeks, who was an hour’s drive from my house. Not ideal, but sounded pretty good after I’d been worn down by all the others!
The insurance has a transportation benefit, so I figured I’d let them pay the gas to drive all the way up there. Well, it turns out that they will drive the patient and one “escort” person. If I bring the baby (which I obviously have to, for a trip that will easily be three hours), I then have to bring Nick or Wolf to hold R.T. while I’m with the doctor. But they won’t allow 2 people to come…
So we ended up driving after all.
At least we all really liked Dr. J. He’s built like a football player, shaved bald head, and wore motorcycle boots under his scrubs! And he was very nice and seemed very competent.
It seems that although the kidney stones aren’t causing any of ther own kinds of problems, they probably are responsible for the recurring UTIs. As foreign bodies, they make a place where things can hide and grow in there… Eeew!
So we scheduled an outpatient surgery for Lithotripsy - the ultrasound breaking up of kidney stones. They can only do so much at a time (since it’s also hard on your surrounding healthy tissue), so he said we might need as many as three sessions to get the three stones taken care of.
We also scheduled another in-office procedure for further diagnosis, as well as treatment, of the recurring UTIs and the constant, but perhaps at this point self-perpetuating, symptoms.
Whew!
Obviously, there’s pelnty more to tell… 